Quilt #15 Macady Moe

Macady with her quilt at school.

Quilt #15 was presented to Macady Moe. I first learned of Macady from my dear friend Tara Wilkinson a few years ago. She talked of a brave young girl who was having surgery to put a rod in her spine.  Since then I have learned that she also has the same syndrome that Tara's daughter Becca has. When a quilt is presented, I ask the recipient if they are aware of anyone who could use a quilt and Tara suggested Macady. It has been an absolute delight to create this one of a kind quilt for her. Macady is interested in becoming a marine biologist so the quilt is meant to reflect the colors of the ocean.


I contacted Macady's mother and ask her to share a little information about Macady:

Macady is an angel sent to earth to show people how to keep their beliefs, hope and dignity alive while suffering chronically... At the age of 11 the doctors diagnosed Macady with Shuermanns Kyphosis which is just opposite of scoliosis.   Instead of her spine growing back and forth like scholiosis.. Her spine grows in pie shaped discs stacking forward and causes her to have a hunchback like spine. Eventually Macady's spine would grow so far forward it would affect much of her body, and primarily her lungs... So Macady at 14, underwent a serious but common procedure installing titanium rods in her back from the top of her neck to the bottom of her thoracic... It is what has taken place in the last 4 years following the procedure that has changed Macady for life. She chronically grew ill. Macady suffers in silence all day everyday with chronic pain of all kinds. She has permanent nerve damage all over her body.She also has lost her cognitive and mobile ability to no explanation from the doctors. Each symptom affects the next and Macady finds herself most of her day in bed, trying to find relief from all kinds of chronic symptoms. The more Macady tries to exercise or help her body, the worse her symptoms get.. She is a mystery to all doctors who see her and it is only thru a loving dedicated friend Tara who has found a doctor that could give a possible diagnosis w a disease called POTS, that is any explanation of what her life has become... Macady wants to experience life as the other girls her age do. So Macady is attending SUU. In her long 4 weeks away from home she is finding that she simply is disabled and cannot pretend to be " normal" like the others. Her courage, the incredible strength she has from knowing who she is and where she is going, shines to the other girls in the world. This quilt (that is so personal), and the Duncan Project that Stacey has created, came at the perfect time to remind Macady and her family that her Heavenly Father is aware of her. Her pains, her needs, her wants and desires, but most of all to remind Macady the HE still works miracles thru acts of service by his angels here on earth like the Wilkinsons and the Tates. 

The day after she received her quilt,  I received the most beautiful text from Macady.  I wanted to share a portion to let you know how truly courageous and remarkable this young woman is

They call this a zombie quilt since you can't
see my head in the photo.

This is Macady Moe:) I got your letter and amazing quilt in the mail yesterday! ...I can't tell you how much it meant to me. I am so touched by this amazing project. Every time life gets to be unbearable, I am reminded every time that we are here to help and love others no matter our own suffering. It was so nice to get a pretty literally comfort package in the mail while I'm down at school all by myself. And I LOVE the colors! Looks just like the ocean! I can't believe you live in Hawaii AND went to suu. We were meant to know each other;) so cool. Thank you for reaching out to me and being in tune with the spirit. Lastly, thank you for telling me the part about the lord caring more about our progress and learning than our comfort. I have never heard a more perfect quote to describe my life. I love learning more than anything and have such a strong desire to become something in life.. and this quote really eased my mind about why I would be allowed to be in so much pain while I'm trying to accomplish good things. I know the lord has been my constant companion in this terribly lonely trial And I know this is how he wants me to live for some unknown reason. But people like you (rare finds) are sent to remind me that someone knows of my effort and struggles that I have for so long kept to myself. I love the quilt so much and you have really brightened my spirits!❤❤
I am lifted by this beautiful girl and her testimony.  She understands more than most about the purpose of her life on earth and the Lord's purpose in our lives.